Social Wellbeing: Carer Support
Working Carers
If you are juggling work with caring for family or friends you are not alone – there are three million working carers in the UK.
A carer is anyone who looks after a family member, a partner or a friend who needs help because of their illness, frailty, disability, a mental health problem or an addition and cannot cope without this additional support.
Caring responsibilities can be thrust upon many of us during our lives, and sometimes this can be unexpected and happen very quickly. 6,000 people become a carer in the UK every day.
Getting help
Caring can be hard work – physically and emotionally. Caring for loved ones can express the very best of who we are, but it can also push us to the brink through emotional, financial and practical strain. It’s important to find out about the different help and support you can get with caring.
Local Authority Assessment: One way to get help and support is through an assessment by the local authority and social services department. Both you and the person/s you are looking after can get an assessment. You can have an assessment no matter what your level of need, the amount of care you provide, or your financial means.
This may result in help and support being provided to you as the carer, or the person you are caring for, to support independence and ease the pressures.
Minor home adaptations up to the value of £1,000 can be provided free of charge through your local authority assessment if they consider that the person you are caring for requires such adaptations.
Even if you are not considered to be eligible for support the local authority must provide you with information and advice on local services to prevent your needs from developing further.
For more information:
- www.careinfoscotland.scot
- www.sharedcarescotland.org.uk
- www.shetlandcarers.org, (you can e-mail carers@shetland.org)
- www.carersuk.org/scotland
- www.shetland.gov.uk
Purchase additional help: You may decide to buy in help for the person you are looking after, One option would be to employ an individual or use a care provider such as a care agency. If you are interested in looking into these kinds of services you could;
- Ask your local authority for a list of approved care providers
- Search on the Care Inspectorate
- Search on the Which? Later Life Directory co.uk/later-life-care/careservices-directory
Equipment & Technology: You could find out about equipment and technology that could help. As well as providing more independence for the person you are looking after, it could make the home safer and your life easier. For example unobtrusive monitoring devices, communication devices, and remote health monitoring. Find out more at https://www.carersuk.org/help-and-advice/technology-and-equipment
Look after your health & wellbeing
Caring for someone can be a full time job, so breaks are vital to your own wellbeing and quality of life. As carers, we have immediate needs such as sleep, eating properly and rest. We also have long term needs such as building relationships, perusing hobbies and achieving at our work goals.
Caring always involves an element of putting our own needs aside. However it is important that we look after ourselves too, so that we can keep going as carers, and also because we are individuals whose needs are just as valid as those of our loved ones.
Stress: can alert us to potential dangers and spur us on to achieve a goal. However, sometimes the balance tips too far and the pressure becomes so intense or persistent that we feel unable to cope. As soon as we notice it’s getting too much, it’s helpful to talk about how we are feeling rather than hoping it will go away.
Take a moment: to think about how you are feeling. Are you worried about anything? How do you feel physically? Do you have a balance between work, caring and your social needs? Do you need a break?
Tailored support: It isn’t the easiest thing to do, but please speak to your line manager if you have caring responsibilities so that they can ensure that you get the tailored support YOU need.
As anyone who has ever had caring responsibilities will tell you, it is a unique journey. One that we can’t write a ‘managerial flow chart’ or ‘bullet pointed guidance’ for. Arrange to meet with your line manager to discuss your situation. Sometimes just to know that someone understands is enough to ease that pressure a little bit, although your line manager will be able to signpost you to all the help and support that the Trust has to offer such as the staying well service, peer supporters and any relevant policy that may be useful to you.
This could also be a really good time to discuss what kind of situations you may face as a carer to help their understanding;
- There may be periods where you have very little sleep
- Why you may not be interested in career progression at the moment
- Requirement to regularly attend treatment or care
- Situation where you may need to leave work with little or no notice
Getting advice and info
Caring can be extremely complicated, whether grappling with the benefits system, speaking with professionals or trying to understand a condition. Each strand is confusing but when all strands are tangled it can be overwhelming.
Looking after someone will often involve dealing with several different professionals. When we feel a professional has not explained things clearly, doesn’t see the whole picture or you are unsure of they are doing what they should do, it can be hard to peak up. But that is exactly what we should do, and this starts with valuing ourselves and our caring role.
You could find out if you have a local carer’s organisation, and if so, what support they offer to carers in your area. To find your local carers organisation visit carersuk.org/localsupport
There are a range of national organisations that can provide help; we have listed some of these below:
Alzheimer’s Society
Information and advice for people with dementia and their carers.
T 0300 222 11 22
Alzheimers Scotland
Adfam
Info and support for anyone affected by someone else’s substance abuse.
adfam.org.uk
Age UK
Information and advice for the over 60s.
T 0800 678 1602
Age UK, Scotland
Care Inspectorate
The independent regulator of health and social care in Scotland
Shetland Carers
A network to support Shetland carers.
Shetland Carers
Citizens Advice
Local offices for advice/representation on benefits, debt and housing.
T 03444 111 444
citizensadvice.org.uk/scotland
Contact
Information and advice for families who care for children with a disability or special need.
T 0808 808 3555
contact.org.uk
Disabled Living Foundation
Information and advice on equipment for independent living.
T 0300 999 0004
Disability Scotland
Independent Age
Information and advice for older people, their families and carers.
T 0800 319 6789
Independent Age, Scotland
Macmillan Cancer Support
Information and advice for people with cancer, their families and carers.
T 0808 808 00 00
macmillan.org.uk
Marie Curie
Support for people living with any terminal illness, and their families.
T 0800 090 2309 mariecurie.org.uk
Mencap
Information and advice for people with a learning disability, their families and carers.
T 0808 808 1111
mencap.org.uk
Mind
Information and advice for people affected by mental illness and their carers.
T 0300 123 3393
Mind, Scotland
National Autistic Society
Advice for autistic people and their friends, family and carers.
T 0808 800 4104
Autism, Scotland
Relate
Counselling and support services for couples, families and young people.
T 0300 100 1234
Relate, Scotland
Rethink
Information, advice and
community services for people affected by severe mental illness and their carers.
T 0300 5000 927
rethink.org
Samaritans
Samaritans are open 24 hours a day, 365 days a year.
T 116 123
E jo@samaritans.org
Samaritans, Scotland
Shelter
Information and advice on housing issues.
T 0808 800 4444
scotland.shelter.org.uk
Stroke Association
Information, support and advice to help those affected by stroke.
T 0303 3033 100
stroke.org.uk
Turn2us
Information and advice on benefits and grants.
T 0808 802 2000
turn2us.org.uk
Financial help
The person you are caring for may be entitled to disability benefits to help pay for the extra costs of long-term illness or disability.
It is a good idea to get a benefits check to make sure you and the person you are caring for are in receipt of all the benefits you are entitled to. It is also good to get advice if you or the person you are looking after, has a change of circumstances as this could affect the decisions you make. Find out more at carersuk.org/benefits.
Council tax: There are sometimes discounts you can get on the Council Tax bill. For example if only one person lives in the property, a 25% discount can be applied, and if no one is in the property a 50% discount. Certain people including some carers and people with a severe mental impairment are not counted when the council work out how many people live at a property.
You may also be able to reduce the cost of your council tax under the disability reduction scheme if your home has had work carried out on it to help you or someone else living with a disability. To find out more carersuk.org/counciltax
Disability benefits are not dependent upon how much money the person you are looking after has, and they are not based on their National Insurance record. However, there are conditions to be met in order to receive one of these;
Disability Living Allowance (DLA): If you are looking after a child under 16, DLA has a component which may be awarded if the child required help with personal care (such as dressing, washing or using the toilet) or supervision to make sure they are safe due to their illness or disability. DLA also has a mobility component and may also be awarded if the child needs help getting around.
Personal Independence Payment (PIP): If you are looking after someone between the age of 16 and state pension age, they could claim PIP. PIP has a daily living component which may be awarded if they need help with daily living activities. PIP also includes a mobility component and can be awarded if they need help getting around.
Attendance Allowance (AA): if you are looking after someone of state pension age they could claim Attendance Allowance. This may be claimed if they need help with personal care or supervision to make sure they are safe. If you yourself are of state pension age and feel you have such needs you may also be eligible.
Carers Allowance (CA): If you are looking after a family member or friend, you may be entitled to Carer’s Allowance if you meet all of the following conditions;
- You look after someone who qualifies for one of the above benefits or Armed Forces Independence Payment (AFIP)
- If you look after that person for at least 35 hours a week
- You earn £128 a week or less (after deductions)
- You satisfy UK presence and residence conditions
If you are getting certain other benefits, including a state pension, then you might not be able to be paid CA at the same time. However, it still may be useful to make a claim and receive what is called the ‘underlying entitlement’ to CA.
For more information carersuk.org/carersallowance
There are other ways in which you may be able to get help with your household finances – such as fuel costs;
- Contact your utility supplier to see if they have discounted tariffs you are eligible for
- If you are of qualifying age, you may be entitled to a Winter Fuel Payment
- If you are in receipt of certain benefits you may be entitled to a Cold Weather Payment when temperatures are extremely low
- If you meet certain conditions you could get a Warm Home Discount on your electricity bill
Help with health care costs;
- Reimbursement of travel to hospital for treatment for a child
Or by applying for loans or grants.
Managing affairs
You may be required to help manage the affairs of the person you are caring for, or you may want to look into this for the future.
There are different ways of doing this, and this largely depends on whether the person you are looking after can make decisions for themselves, commonly referred to as ‘having mental capacity’, or whether they are unable to make decisions for themselves known as ‘lacking mental capacity’.
If the person has mental capacity but wants some help with managing their bank or building society account, they could make a third party mandate. The person you are looking after may also want to consider making a lasting power of attorney (POA). They can only do this whilst they have capacity.
The two main types are:
POA for property and financial affairs – which can be used before the person is unable to make their own decisions to help with paying bills, collecting benefits and pensions or when selling a home for example.
POA for health and welfare – this can only be used when the person is unable to make their own decisions.
To find out more, carersuk.org/managing-someones-affairs